Meet my friend…Thalid

… Just trying to raise awareness….

Today Thalid wants to talk about going clapping.

If your happy and you know it clap your…….. feet?…..

Something Thalid has never done in her life, that’s because her hands can’t even touch together. She has been to lots of concerts to see musical artists but has never been able to show her appreciation to them for a great concert by clapping. Thalid loves her music but clapping with her feet is just not the same. Clapping with your feet doesn’t make the same noise, and no one can see you clapping with your feet in a crowded concert, and of course you have to sit down to clap..

One good thing about music, when it hits you, you feel no pain. Bob Marley

Thalidomide survivors struggle with – everyday things.

Thalid has never been able to clap.

 

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Meet my new friend…Thalid
… Just trying to raise awareness….

Today Thalid wants to talk about eating.

Something she loves to do. How does she pick up a sandwich? A simple everyday lunch can be so frustrating to Thalid, especially when all the filling falls out of it.. or when she is at a picnic and can’t reach the plate sitting on her lap.. 😊

Thalidomide survivors struggle with – everyday things.

Trying to eat a simple sandwich can be hard.

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Meet my new friend…Thalid
… Just trying to raise awareness….
Today Thalid wants to talk about hanging the washing on the line.

Something that has been done for generations, I can remember my granny hanging washing out that had been put through the old wringer and the clothes would be squashed flat. The OLD washing line was propped up with a big bit of timber, the clothes pegs were big and made of wood. Those were the days… Still to this day I don’t hang clothes on a clothes line as it is a bit hard to reach the line when my arms don’t reach my ears. So I get someone else to do this for me…

I was once told by an OT (occupational therapist, haven’t found 1 that is useful yet) that “I was lazy for not hanging my washing on the clothes line”.

Thalidomide survivors struggle with – everyday things.

hanging washing on the clothes line.

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf-on-the-shelf so it looked like me…

… Just trying to raise awareness….

Today Thalid went out for a cup of coffee, a simple thing that most of us do every week. I want you to think about how you pick up your coffee. One handed or do you hold it between both hands? Now take a moment to think how would I drink it if you couldn’t use your hands to hold the cup. This is how Thalid has to do it, she raises her right leg up on to the table to pick the cup up with her foot. Imagine doing that in public every time you went out or you were at a friend’s place for a coffee.

Thalidomide survivors struggle with – everyday things.

You’re only here for a short visit. Don’t hurry, don’t worry. Be sure to smell the flowers along the way.

How do you drink your coffee?

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf-on-the-shelf so it looked like me…
… Just trying to raise awareness….

Today Thalid wants to cut up some rockmelon to eat.. Thalid can use a knife very skilfully with her feet but these days she is in too much pain to do much in the kitchen now. Thalid used to do all the cooking once which she really enjoyed, sadly those days for her are long gone.

Thalidomide survivors struggle with – everyday things.

‘All progress takes place outside the comfort zone’

Cutting up rockmelon.

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf on the shelf so it looked like me…

… Just trying to raise awareness….

Remember the post about how will ‘Thalid on the shelf’ get mail out of the letterbox?
A simple task for those who have arms to reach right inside the box. Thalid on the shelf on the other hand has to litterally stick her head into the box to reach the mail with her tiny arm and when there is only bills in the box she wonders why she struggled so much to get those letters out, luckilly it’s Christmas time and there are Christmas cards in the box….
Merry Christmas everyone.. 🎄

Yesterday there was something stuck right at the back of the letterbox so Thalid lifted her leg up in the box to get it out as her tiny arms weren’t long enough to reach right to the back. So here thalid is, standing on 1 leg while raising her other leg up to the hight of the box (which is 1150 Millimeters or 3.7 feet high off the ground).. Thalid on the shelf is doing a reinactment of how I might end up one day..with my foot stuck in the letterbox.

Something thalidomide survivors struggle with – everyday items.

Getting mail out of the letterbox with my foot.

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf on the shelf so it looked like me…

… Just trying to raise awareness….

Today Thalid on the shelf had to go to torture..oops I meant physiotherapy to get massaged, something she has to do every week. Now when Thalid says to people she gets massaged every week people think ohh lucky her.. Thalid’s massages are anything but relaxing, they are an hour of excrutiating pain..Why does Thalid need to go every week because she lives in so much pain from having to do things with her feet, her tiny arms. Eating, drinking, dressing, reaching things, washing hair, opening doors..the list just keeps going on and on…..The drug thalidomide also killed our nerve endings which also adds to pain levels, which are usually sky high. Thalid has also had open-heart surgery many times so her rib cage gets a lot of pain…. Thalid has a headache everyday 24/7 it never goes away, she has pain in her hips, her back, her neck, her shoulders, her head, her rib cage….. So thalid’s wonderful physio has her work cut out for her everyweek in trying to keep Thalid’s body moving….

Something thalidomide survivors struggle with – everyday things.

….let the adventures of “Thalid on the shelf” begin ..

Thalid goes to weekly physio treatments to try and keep the pain at bay..

 

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf on the shelf so it looked like me…

… Just trying to raise awareness….

How will ‘Thalid on the shelf’ get mail out of the letterbox?
A simple task for those who have arms to reach right inside the box. Thalid on the shelf on the other hand has to litterally stick her head into the box to reach the mail with her tiny arm and when there is only bills in the box she wonders why she struggled so much to get those letters out, luckilly it’s Christmas time and there are Christmas cards in the box….
Merry Christmas everyone.. 🎄

Something thalidomide survivors struggle with – everyday items..

….let the adventures of “Thalid on the shelf” begin ..

Getting the mail out of the letterbox.

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf on the shelf so it looked like me…
yep I am crazy…

How will ‘thalid on the shelf’ get the shampoo out of the bottle to wash her hair? How does she wash her hair?

Something thalidomide survivors struggle with every time they have to wash their hair…

….let the adventures of “thalid on the shelf” begin ..

How does a Thalidomide survivor wash their hair?

 

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf on the shelf so it looked like me…
yep I am crazy… Just trying to raise awareness…

How will ‘thalid on the shelf’ use a remote control? Imaginge sitting down in your favourite lounge chair to watch a bit of television, your show has ended and you need to change the channel, you reeach out with your arm and grab that remote with out a second thought… Thalid on the shelf has to reach out her leg pick the remote up with her toes, then hold it steady between both feet, aim it at the tv.. while her big toe works the buttons on the remote, balances it again, picks it back up with right foot and places it back down, to where it came from….

Something thalidomide survivors struggle with – everyday items..

….let the adventures of “thalid on the shelf” begin .

How Thalid on the shelf uses a remote control.

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf on the shelf so it looked like me…
yep I am crazy… Just trying to raise awareness….
 
How will ‘Thalid on the shelf’ open a door with a key? Imaginge how many times you open and close a door every day. Now try to use a key to lock/unlock that door with no arms, how do you do it? This photo shows Thalid on the self is demonstrating how she does it. yes, she operates the key with her mouth, Sometimes she would stand on her left leg and raise her right leg to open the door with the key but that is hard work when door locks are so high..
 
Something thalidomide survivors struggle with – everyday items..
 
….let the adventures of “Thalid on the shelf” begin ..

Thalid on the shelf opening a door.

 

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Meet my new friend…Thalid on the shelf…
I cut the arms off an elf on the shelf so it looked like me…
yep I am crazy…

How will ‘thalid on the shelf’ put her seatbelt on?

Something thalidomide survivors struggle with every day…

I did this post to show what we have to put up whith when we go out in the car, I struggle with seatbelts. As I don’t drive a car I catch a lot of taxis…there have been some sleezy taxi drivers that have had to help me put my seatbelt on. And I mean sleezy.. …

 

….let the adventures of thalid on the shelf begin ..

 

How does
Thalid on the shelf
put on her
seatbelt?

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Meet my new friend…. Thalid on a shelf…
I cut the arms off an ‘elf on a shelf’ so it looked like me…

How will ‘Thalid on a shelf’ turn the tap on? Something thalidomide survivors struggle with every day… even with long handled taps..

 

Let the adventures of thalid on a shelf…..     Just trying to raise awareness.

the adventures of “Thalid on the shelf”